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NY Times strangely quiet on Alzheimer’s test that “can be 100 percent accurate.”

On the front page of today’s New York Times, long-time science writer Gina Kolata reports that an FDA advisory committee has recommended approval of “the first test — a brain scan — that can show the characteristic plaques ofAlzheimer’s disease in the brain of a living person.”

Kolata is careful not to call this the first test for Alzheimer’s disease, but she treats it, throughout the story, as if it were. The new scan, she writes, “would be especially valuable in a common and troubling situation — trying to make a diagnosis when it is not clear whether a patient’s memory problems are a result of Alzheimer’s disease or something else.”

And she goes on in a similar vein:  ”…having a diagnosis is important for planning and for understanding what lies ahead…” She quotes Dr. P. Murali Doraiswamy, an Alzheimer’s researcher at Duke University, who said, “This technique will allow family doctors to feel confident ruling out Alzheimer’s,” he said.

That all makes it sound as if this is the first test for Alzheimer’s. Another researcher says “this is a big deal.” “This is nothing but a positive for our families,” says a representative from the Alzheimer’s Association. If it were not the first test for Alzheimer’s disease, it might not be such a big deal. But I’m convinced–it’s a big deal!

It is not, however, the first test for Alzheimers–a fact I glean from Kolata’s own reporting.

On August 9, 2010, she reported on the front page of the Times that researchers had developed “a spinal fluid test can be 100 percent accurate in in identifying a signature level of abnormal proteins in patients with significant memory loss who went on to develop Alzheimer’s disease.”

Again, note the careful qualifications. But reading over the meaningless phrase “a signature level of abnormal proteins,” Kolata is reporting on the development of a predictive test for Alzheimer’s disease.

Kolata’s story today on the scan for plaques is strangely quiet on that previous reporting. She might have said–and should have said–that the scan follows the announcement last year of a spinal-fluid test that could also help identify Alzheimer’s disease. Today’s brain scan might be more accurately described as the second test for Alzheimer’s disease–with appropriate qualifications noted.

Why would she omit mention of that earlier test? Perhaps because it was widely criticized here on the Tracker and elsewhere, and even “corrected” in the Times itself, as I noted at the time.

Kolata wrote then that the new test “can be 100 percent accurate,” a phrase, as I wrote, that doesn’t mean anything–although it’s likely to be read by many as a test that “is” 100 percent accurate. (Every pitch a batter hits “can be” a home run; only a few of them are.)

Kolata has done her readers a disservice. And she’s done a disservice to her colleagues, who are stuck, as I often was, trying to explain to their editors why trying to match a big story on the front page of the New York Times isn’t going to be as easy as they think.

- Paul Raeburn

3 Responses to “NY Times strangely quiet on Alzheimer’s test that “can be 100 percent accurate.””

  1. Brandon Keim Says:

    On an NYT & Alzheimer’s-related note, they had a fascinating article recently on an Arizona nursing home that’s using (evidence-based) compassion and comfort, rather than medicine-focused protocols, in caring for people with Alzheimer’s.

    https://www.nytimes.com/2011/01/01/health/01care.html

    and on NPR:

    http://hereandnow.wbur.org/2011/01/21/alzheimers-beatitudes-campus

    It’s really made me wonder about the nature and momentum of Alzheimer’s research, and whether us journalists ought to spend less time on approaches amenable to molecular investigation, and more on the unglamorous, common-sense and effective.


  2. Cathy Arnst Says:

    Also strange is the fact that the New York Times states with much front page fanfare that the FDA advisory committee “recommended unanimously” that the agency approve this test. Yet almost all other media outlets reported that the committee actaully voted 13-3 that the test shouldn’t be approved “at the present time.”
    The committee did vote unanimously that it would support approval at a later date if Eli Lilly comes up with the proper training materials, but that is not the sure thing implied by Kolata’s story. Even Lilly’s own press release led with the 13-3 vote for delay. Does anyone think this calls for another correction?

    The Wall St. Journal Story: The FDA Seeks More Evidence for Alzheimer’s Scanning Agent
    http://online.wsj.com/article/SB10001424052748703921504576094762542415444.html?ru=yahoo&mod=yahoo_hs


  3. Paul Raeburn Says:

    Brandon: Excellent point–there is more to Alzheimer’s care than scans and tests.

    Cathy: The coverage seems to me to be split. USA Today and the LA Times went with the positive approach, while Reuters reported that the panel “rejects” the scan, just to mention a few. Sadly, USA Today’s headline was “FDA recommends new compound…” Wrong. It was an advisory panel, not the FDA. Copy editors might want to actually edit copy before they write heds. I’m just sayin’.


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